Press Release November 17, 2011

ene, mene, mini: Give preterm infants your voice!
Online voting for better treatment and care of preterm infants

Special care and better family support for our smallest babies: This call is the focus of the European-wide online voting starting on the occasion of the World Prematurity Day on 17 November 2011. Internet users voting for an improved care of preterm infants support a ‘Call to Action for Newborn Health’ which will be introduced to the European Parliament on 23 November 2011. Well-known signers will be Dr. Angelika Niebler and Dr. Peter Liese, both Members of the European Parliament. Voting will be performed online on the new website www.ene-mene-mini.eu launched by the European Foundation for the Care of Newborn Infants (EFCNI) and Dräger in cooperation with national parents’ organisations across Europe.

Parents who gave birth to a preterm baby or persons who shared the time before and after a preterm birth with the concerned family know quite well the feeling of helplessness: Even most European countries provide high-quality neonatal care, the special needs of preterm infants are often neglected. Furthermore, there is a lack of comprehensive public information and education on this topic: “Still today many pregnant women are not aware of potential risk factors and how to prevent preterm birth. Concerned parents need better guidance how to care for their preterm baby during their stay in the hospital and after discharge as well as how to obtain support“, says Silke Mader, Chairwoman of EFCNI’s Executive Board. According to a pan-European data collection about prevention, treatment and care of preterm infants (EU Benchmarking Report 2009/2010 “Too Little, Too Late?”), thousands of infant deaths, chronic diseases and other medical conditions related to preterm birth could be prevented through improved antenatal and neonatal care.

Ten steps towards European-wide harmonized standards
Dr. Angelika Niebler, who will introduce the ‘Call to Action for Newborn Health’ to the European Parliament on 23 November 2011 together with Dr. Peter Liese and other Members of the European Parliament, is hoping to set a milestone in implementing European-wide quality standards for the treatment and care of preterm infants: “As patron of EFCNI it is of particular importance to me that equal and effective neonatal care and better prevention are provided. Every online vote helps to give our call extra weight. Children are the future of our society!” Dr. Peter Liese summarizes the concern of the ten-point Call to Action to be launched on 23 November: “The chain of conscientious education on preterm birth, improved quality of care and enhanced after-care programmes for the baby’s growing up needs to be brought up to consistent high standards.” The EFCNI report points out the need for political action. Until now there are no coordinated quality standards for the care and treatment of preterm infants in hospitals. There is also a lack in family support and proper educational support for former preterm babies.
 
Online voice for preterm infants
The new website www.ene-mene-mini.eu is an information platform all about preterm birth. In addition to interesting facts about preterm babies and possibilities for better prevention of preterm birth it offers information on treatment and care in the Neonatal Intensive Care Unit (NICU) and after discharge. At the same time, it provides links to associations and personal stories of concerned parents or family members. The site was initiated by the European Foundation for the Care of Newborn Infants (EFCNI) and the medical and safety company Dräger. With more than 60 years of experience in the fields of neonatal and preterm baby care in hospitals, the company feels especially responsible for these tiny patients. The national parents’ organisations in Europe support the website.

 
About EFCNI
The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organisation to represent the interests of preterm and newborn infants and their families. It gathers together parents and medical professionals with the common goal of improving long-term health of newborn and preterm children by ensuring the best possible prevention, treatment, care and support. EFCNI receives funding from its partners Abbott, Nestlé Nutrition and other private companies and individual donors. For more information please click here: www.efcni.org

About Dräger
Dräger is a leading international company in the fields of medical and safety technology. The family business was founded in 1889 in Lübeck and is now in its fifth generation. The company has grown into a global group, which is now listed on the stock exchange. The product range in the medical technology division comprises anesthesia workstations, intensive care ventilators, and warming therapy for newborns. Patient monitoring, IT solutions, accessories and consumables, ceiling supply units and lighting systems, and central supply units for medical gases complement the range. Dräger has about 11,000 employees worldwide and is currently present in more than 190 countries. The company has sales and service subsidiaries in over 40 countries. Additional information is available at www.draeger.com.

English
Deutsch
Polski